Start with the lab record
Anchor the example in Tafazzin genetic testing and the ordering HCP already present on the record.
Case study · Barth syndrome · Care Team
In a Barth syndrome program example, Prognos Care Team expanded one patient’s provider view from 1 ordering HCP to 13 unique HCPs, adding context to help the team evaluate whom to engage.
More of the patient’s care network
Single-patient example. HCP counts are deduplicated by NPI.
The challenge
The starting lab record identified one ordering HCP, recorded as Internal Medicine. That was one connection to a patient whose observed care network included additional providers.
For a rare disease team evaluating HCP engagement, the next question is which other clinicians appear in the patient’s journey—and what context is available to assess their relevance.
The objective: expand visibility beyond the ordering provider so the team has a broader network to evaluate.
One patient, before and after Care Team enrichment
How Care Team added context
The example combines the lab-record provider with additional observed HCP activity, giving the team more context for engagement planning.
Anchor the example in Tafazzin genetic testing and the ordering HCP already present on the record.
Add 12 distinct Care Team NPIs beyond the ordering NPI, revealing five recorded specialty categories.
Use the observed Care Team events to evaluate the breadth and concentration of HCP activity around the patient.
Additional HCP visibility
The recorded specialty breakdown shows the range of additional providers visible in this patient example.
| Recorded specialty / role | Distribution | HCPs |
|---|---|---|
| Internal Medicine | 4 | |
| Nurse Practitioner | 4 | |
| Emergency Medicine | 2 | |
| Psychiatry & Neurology | 1 | |
| Specialist | 1 |
Longitudinal context
The Care Team view contained 101 recorded events across the 12 additional HCPs. Four of those HCPs accounted for 83 events.
That concentration gives the team another dimension to review alongside provider identity and recorded specialty when evaluating engagement priorities.
What the example illustrates
The combined provider view helps the team move from the HCP listed on a test to a broader assessment of the patient’s observed network.
Consider additional observed providers who would be absent from an ordering-provider-only view.
Review recorded roles against the team’s own criteria for clinical relevance and appropriate engagement.
Assess the pattern of available HCP activity alongside the lab signal to inform further evaluation.
A broader care network helps teams evaluate which HCPs to engage. This example adds 12 HCPs and longitudinal activity context to a starting record with one ordering provider.
Explore the approach
Bring your indication, available lab data, and HCP engagement questions to a conversation with Prognos.
Talk with Prognos about the additional provider context that could support your rare disease program.