The pursuit of patients with rare diseases is a critical but notoriously challenging endeavor for the biopharma industry. For many conditions—from Neuromyelitis optica spectrum disorder (NMOSD) and Paroxysmal Nocturnal Hemoglobinuria (PNH) to complex genetic disorders like Hereditary Transthyretin (hATTR) Amyloidosis and Duchenne Muscular Dystrophy (DMD)—the diagnostic journey is long, the patient population is small, and the treating providers are often hidden outside of major academic centers.
The challenge is clear: how do you efficiently find these net-new patients and providers without exhausting valuable resources on patient populations you've already identified?
The Problem with Traditional Patient Finding
Traditional rare disease patient identification methods often focus heavily on established networks and large centers of excellence. While these centers are important, this approach inevitably misses a crucial segment of patients—those treated by community specialists, those whose diagnoses are only recently confirmed, or those whose data exists in sources not typically leveraged.
Chasing these "missing patients" through traditional means is costly and resource-intensive, with a high risk of low return. It often involves engaging with providers who have already been contacted or who are already treating patients known to your brand.
Introducing the Rare Disease Patient Finder: Precision-Driven Actionability
Prognos Health’s Rare Disease Patient Finder solution is built to cut through this inefficiency and drive immediate, measurable ROI. Our service is strategically designed to locate and surface these overlooked, high-value patient populations in therapeutic areas we specialize in, including Myasthenia Gravis (MG), Primary Biliary Cholangitis (PBC), Lupus Nephritis, and Spinal Muscular Atrophy.
This is not a blanket approach; it is a surgical tool focused entirely on net-new discovery.
Value-Based, Results-Driven Pricing
The core of our service is cost-effectiveness. We shift the financial risk by adopting a results-based model: you only pay for each newly identified patient who meets your specific clinical criteria.
This ensures your budget is tied directly to verified, actionable leads, not just search volume. For complete financial predictability, we can cap the total number of patients, aligning the program precisely with your budget and procurement cycles. Furthermore, the program is built for continuity—it runs until the patient cap is met, ensuring your search isn't artificially halted by the calendar year-end.
Actionability and Precision: The Pillars of ROI
The true value of the Patient Finder lies in the quality and actionability of the data delivered:
Proof of Concept: Driving Real-World Results
Our ability to identify and activate these missing patients has a proven impact on commercial strategy. In one example, using our similar Alerts data, a client experienced a 700% increase in patient identification for a targeted therapy by focusing on providers with new-to-brand patient activity. This demonstrates the power of shifting focus to net-new information and providers.
Learn more about this success here: Prognos Health Alerts Case Study
The Rare Disease Patient Finder is a smarter, more efficient way to allocate resources, ensuring that every dollar spent contributes directly to successfully finding the patients who need life-changing therapies for conditions like Hereditary Angioedema (HAE), Fabry Disease, or Transthyretin Amyloid Cardiomyopathy (ATTR-CM).
It's time to move beyond the constraints of traditional patient finding.
Interested in having a conversation about our Rare Disease Patient Finder? Talk to our clinical team today.